health & wellness

Gillibrand announces legislation to reduce mortality rates for mothers

Posted 29 August 2018 at 7:16 am

U.S. has more pregnancy-related deaths than any other developed country

Press Release, U.S. Sen. Kirsten Gillibrand

Courtesy of Kirsten Gillibrand’s Office – Maternal deaths per 100,000 live births

WASHINGTON, DC – With maternal mortality rates on the rise across the country and New York State, U.S. Senator Kirsten Gillibrand on Tuesday announced the Modernizing Obstetric Medicine Standards (MOMS) Act, new legislation that would help prevent women from suffering from medical complications or dying before, during, and after childbirth.

The United States has more pregnancy-related deaths than any other developed country in the world, particularly among black women. Each year it is estimated that there are at least 50,000 women who experience a complication during childbirth, and according to an NPR and ProPublica report, for every woman who dies in childbirth in the US, there are 70 women who nearly die.

The Centers for Disease Control and Prevention (CDC) estimates that 60 percent of these deaths and complications are preventable. Hospitals often lack the funding necessary for supplies and proper training to implement standards to prevent complications and deaths arising from pregnancy and childbirth.

“Our state has one of the highest maternal mortality rates in the country, and our country has the highest maternal mortality rate in the industrialized world,” Gillibrand said. “It’s even worse for black women, who are three to four times more likely to die from pregnancy-related complications than white women. This is completely unacceptable and largely avoidable, and it’s a crisis that we can and must solve now.”

Kirsten Gillibrand

The MOMS Act would help reduce maternal deaths and complications in the United States by providing funding to states and hospitals to develop and implement standardized maternal safety best practices, in conjunction with the Department of Health and Human Services (HHS), to prevent and respond to complications arising from pregnancy and childbirth.

New York State has one of the highest maternal mortality rates in the country, and over the past decade, the state has experienced a 60 percent increase in maternal mortality. To date, in August 2018, the rate of maternal mortality in New York State is 20.9 maternal deaths per 100,000 live births. In New York City, where half of the state’s births take place, there have been 22.6 maternal deaths per 100,000 live births so far this year. Racial disparities are also very evident, especially with black women, who are three to four times more likely to die from complications arising during or after childbirth. In New York City, black women are 12 times more likely to die from complications arising during or after childbirth.

“This much-needed legislation would help our hospitals monitor all mothers before, during, and after they give birth for preventable but potentially fatal conditions like hemorrhage and preeclampsia, and it would provide them with the federal funding they need to purchase supplies to implement new procedures and effectively treat patients,” Gillibrand said. “We need to protect and value mothers, and I urge my colleagues to join me in supporting this legislation to address the urgent crisis of maternal mortality and help end racial disparities in our health care system.”

The MOMS Act is cosponsored by Senators Cory Booker (D-NJ) and Kamala Harris (D-CA). This legislation would address the problem of maternal mortality by providing new funding to hospitals with obstetrics and gynecology practices that want to improve their response to pregnancy-related and pregnancy-associated complications by implementing standardized best practices.

Specifically, the MOMS Act would do the following:

• Promote and update maternal safety standards and best practices for hospitals: The MOMS Act would expand the Alliance for Innovation on Maternal Health (AIM) Program at HHS to develop new and update existing standardized maternal safety best practices and to provide technical assistance to states and hospitals to voluntarily implement such standards to prevent maternal mortality and morbidity.

• Create a grant program to help states and hospitals implement the standardized maternal safety best practices developed by AIM: The grant funding would be used to further develop, purchase the necessary supplies for, and conduct training to fully implement the new best practices for preventing maternal death and complications. Funding would be prioritized for hospitals serving low-income, at-risk, and rural populations.

• Improve the CDC Pregnancy Mortality Surveillance System to include reports from state Maternal Mortality Review Committee (MMRC) investigations of pregnancy-related and pregnancy-associated deaths.

• Direct the CDC to provide technical assistance to State MMRCs to review pregnancy-related and pregnancy-associated complications.

Gillibrand’s legislation is supported by Moms Rising, the Black Mamas Matter Alliance, the American College of Obstetrics and Gynecologists, and the Association of Maternal and Child Health Programs. Gillibrand is also a cosponsor of the Maternal Care Access and Reducing Emergencies Act (S. 3363), which would authorize two new grant programs to address the racial disparities in maternal care; the Maternal Health Accountability Act of 2017 (S. 1112), which would provide funding to states and Indian tribes to establish a new, or support the work of an existing, MMRC; and the Quality Care for Moms and Babies Act (S. 2637), which would create new ways to measure the quality of existing maternity and infant care provided through Medicaid and the Children’s Health Insurance Program (CHIP).

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Albion natives who lost son to flu urge vaccinations

By Tom Rivers, Editor Posted 27 August 2018 at 3:26 pm

Tony and Laura Sidari say young children are especially vulnerable

Photo by Tom Rivers

ALBION – The Albion Rotary Club this morning presented a check for $2,670 to the Leon Sidari Memorial Fund, which will be used by Orleans Community Health to promote flu vaccinations and also for the annual Breakfast with Santa at Medina Memorial Hospital.

Leon’s Fund was established as a non-profit organization in memory of Leon Sidari, who was 4 ½ when he died on Christmas, two days after getting the flu. Leon is the son of Albion natives Laura (Lyman) Sidari and Tony Sidari. They are both medical doctors who were based in San Antonio for six years before recently moving to Dayton, Ohio.

The Sidaris have been in Albion recently visiting family and friends. Pictured, from left, includes, Cindy Perry, Rotary golf tournament organizer and director of education, wellness and marketing for Orleans Community Health’s Community Partners; Cameron Sidari, 9 months; Laura Sidari; Tristan Sidari, 2; Tony Sidari; and Karen Sawicz, president of the Albion Rotary Club.

Leon Sidari

The funds from Rotary were raised during a July 19 golf tournament. The Sidaris are directing those funds to Orleans Community Health, which will be promoting flu shots in the community. Medina Memorial Hospital also has an annual breakfast with Santa and some of the golf tournament proceeds will go towards that event. Leon enjoyed Christmas and loved to give away presents.

“He was a fantastic kid,” his mother said. “We had a lot of hopes and dreams for him.”

The memorial fund in Leon’s name promotes flu shots and also has money to be given to help children with medical problems at Christmas time.

Laura and Tony said their son was very healthy and started showing flu symptoms on Dec. 23. Within 48 hours he died despite the efforts of a medical team at the hospital.

Leon had been vaccinated for the flu in prior years and was due for a flu shot soon after Christmas. He died from the strain of the virus called H3N2.

The Sidaris say young, healthy children can be ravaged by the flu. They are encouraging all children, 6 months or older, to be vaccinated.

Parents should have the children vaccinated every year to build their immunity in fighting off the flu, the Sidaris said. They urge children to be vaccinated early in the flu season in September or October.

“The flu shot reduces the risk of severe complications,” Tony said this morning at Hoag Library, where he and his wife accepted a ceremonial check from the Rotary Club.

Tony and Laura grew up together in Albion, attending the same preschool. Tony graduated from Albion in 2003 with Laura finishing Albion a year later. They were in the marching band together. They started dating at Cornell University.

They both earned licenses as medical doctors with Laura working as a psychiatrist and Tony as a rheumatologist. They are both in the Air Force.

Tony is the son of Lori Murek of Albion and Paul Sidari, who lives near Boston, Massachusetts. Laura is the daughter of Nathan and Gail Lyman, who now live in Ithaca.

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Madisonation golf tournament raises $7K for Lockport girl battling cancer

By Tom Rivers, Editor Posted 27 August 2018 at 12:06 pm

Photos by Tom Rivers

MURRAY – Th eighth annual Madisonation golf tournament was Sunday at Hickory Ridge Country Club. The tournament started in honor of Madison Muckle of Albion. She is pictured at right with her father Kevin Muckle, who organizes the annual event.

Proceeds from the tournament this year are being directed to Natalie Morley, 6, (left) and her mother Ariel Riddick of Lockport. Natalie is fighting cancer for the second time. She just endured a year of radiation and will be checked in October to see if the cancer is gone.

Natalie starts first grade today in Kenmore. She has been fighting stage 3of Embryonal Rhabdomyosarcoma Cancer, a soft tissue tumor. Her mother is optimistic the cancer is gone.

Muckle has been organizing the tournament for several years. He said he is grateful for the people who helped his daughter get through 2 ½ years of cancer treatments. On April 10 she reached the five-year mark of being cancer free.

Muckle of Batavia said he is very thankful for his daughter and her success in overcoming cancer. Madison, 10, starts fifth grade next week at Albion.

Mr. Muckle works as a traveling sales rep for a medical equipment company. He works on the golf tournament each year for about four months, lining up sponsors, raffle donations and golfers.

Scott Flick of Flicktures created this artwork of Bills rookie quarterback Josh Allen. There were many memorabilia items at the auction for players from the Buffalo Bills, Sabres and New York Yankees.

There were about 100 golfers on Sunday and the banquet was attended by about 160 people.

In the past the tournament has benefitted Camp Good Days, the Ronald McDonald House, the Make-A-Wish Foundation or other local families with a child fighting cancer.

Muckle met with Natalie and her mother and decided the funds this year should help Natalie’s family.

“She is a great kid,” he said.

Muckle was connected to Natalie’s family through a social worker at Roswell Park Cancer Center in Buffalo.

The tournament raised $7,000. That will help with out-of-pocket medical costs, gas, parking, food and other expenses.

Muckle thanked the many supporters for the tournament.

“Looking out and seeing all of these people is an emotional thing,” he said. “We do this because we want to give back.”

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$1 million in federal budget for national firefighter cancer registry

Posted 22 August 2018 at 1:02 pm

Press Release, U.S. Sen. Charles Schumer

Photo by Tom Rivers: Albion firefighters battle a garage fire on Jan. 2, 2016 on South Clinton Street.

U.S. Senate Minority Leader Charles E. Schumer announced that as an amendment to the upcoming FY2019 Health and Human Services (HHS) minibus appropriations bill, the U.S. Senate passed $1 million in FY2019 funding for the national firefighter cancer registry.

Schumer explained that in June of this year, Congress passed legislation that would establish a specialized national firefighters’ cancer registry to be managed by the Centers for Disease Control and Prevention (CDC). Schumer has long fought for this critical registry that would improve collection capabilities and activities related to the nationwide monitoring of cancer incidence among all firefighters, both career and volunteer. Schumer called the Senate passing funding for this registry a big step in the right direction, and vowed to see the funding through Congress and signed into law.

“Firefighters risk their lives every day, exposing themselves to harmful toxins and pollutants, and charging into extreme danger,” Schumer said. “We owe it to these courageous men and women to ensure that if they fall ill, they receive first-rate medical care and treatment.”

According to a five-year study conducted by the National Institute of Occupational Safety and Health, there are twice as many firefighters in the U.S. with malignant mesothelioma, a rare type of cancer caused by exposure to asbestos, when compared to the general population. The same study also found that firefighters have an increased risk of death from lung cancer and leukemia as compared to the general population.

“That’s why I was so proud to lead the effort to pass this bill and support this funding for the first-ever national firefighter cancer registry,” Schumer said. “The Senate took a big step in getting this vital program up and running. This registry, which I’ve long supported, will help researchers track, treat, and eventually prevent firefighters being stricken by cancer. I’ll always work tirelessly on behalf of our first responders, and vow to see this funding through Congress and signed into law.”

Schumer explained that firefighters are exposed to a range of harmful toxins when responding to emergency situations, often as a result of the noxious flame retardants and other chemicals that are used in everyday items, from furniture to clothing, and to even children’s toys. Experts and scientists have repeatedly sounded the alarm on the danger of these toxic chemicals because they have been found to cause developmental delays in children from long-term exposure in addition to rare cancers in firefighters when these products burn and the toxins become airborne.

Schumer said research has indicated that there is a strong connection between firefighting and an increased risk for several major cancers, including testicular, stomach, multiple myeloma and brain cancers. However, there has never been a long-term registry put in place that could be used to track the potential connections between firefighting and incidences of cancer.

Schumer, therefore, said this national firefighter cancer registry is of the utmost importance, so experts and researchers can more effectively monitor nationwide trends and incidences of cancer among firefighter – both career and volunteer. Schumer said such a registry would help medical professionals more effectively identify and treat cancer in firefighters over the long-term.

Specifically, this national firefighter cancer registry will do the following:

• First, this registry will compile in one place the epidemiological information submitted by healthcare professionals related to cancer incidence among firefighters.

• Second, it will make anonymous data available to public health researchers so that they would have access to the comprehensive datasets that will allow them to expand this groundbreaking research.

• Third, this registry will improve our understanding of cancer incidence as the registry grows, which could potentially lead to the development of advanced safety protocols and safeguards for the firefighters on the front lines each day.

• Finally, this legislation will allow for increased collaboration between the CDC and epidemiologists, public health experts, clinicians and firefighters through regular and consistent consultations to improve the effectiveness and accuracy of the registry.

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GCASA opens Opioid Treatment Program on Aug. 13 in Batavia

Posted 1 August 2018 at 2:52 pm

Press Release, GCASA

BATAVIA – The Genesee/Orleans Council on Alcoholism and Substance Abuse (GCASA) is very pleased to announce that the Opioid Treatment Program (OTP) will open on August 13. This will allow patients to receive methadone to treat their addiction.

GCASA has been providing Medication Assisted Treatment since 2004. Like many other diseases such as heart disease or diabetes, patients require medication to treat their medical conditions.  Dr. Matthew Fernaays, GCASA’s medical director, has prescribed naltrexone and buprenorphine for patients for several years, with great success for some patients. But they don’t work for all patients. With the opening of the OTP, he will be able to prescribe methadone to treat a patient’s addiction, increasing access to appropriate treatment services for residents in Genesee, Orleans, and Wyoming counties.

“The ability to provide methadone treatment in our rural area will help so many people in our community,” said Kathy Hodgins, Senior Services Director at GCASA. “Those who are unable to drive to Buffalo or Rochester daily will be able to access the care they need to treat their addiction right here in Batavia. This is huge for our community.”

Methadone is highly regulated and monitored. Licenses were obtained by NYS Office of Alcoholism and Substance Abuse Services (OASAS), the Drug Enforcement Administration (DEA), and Substance Abuse and Mental Health Services Administration (SAMHSA).

Research shows that most communities with similar programs have decreased rates of crime because people are able to get the help they need, instead of having to steal to maintain their drug use.

GCASA is very excited to be able to offer this treatment to help fight the opioid crisis.

“We want to see people in recovery,” said John Bennett, GCASA executive director. “We are working hard to fill in the gaps that currently exist in treatment services. We know that there are many pathways to recovery and we are grateful to be able to provide another path with methadone.”

GCASA has been serving Genesee and Orleans Counties for over 40 years. Services include prevention education and outpatient and residential treatment for individuals with substance use disorders; and an employee assistance program.

For more information, please call 585-343-1124 or visit gcasa.net.

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Orleans County coroner leading state association in combating opioid crisis

The New York State Association of Counties and the NYS Association of County Coroners & Medical Examiners created a public service announcement about the opioid crisis.

By Tom Rivers, Editor Posted 27 July 2018 at 2:20 pm

‘These are loved ones. They’re not just statistics. They are someone’s son, daughter, father or uncle. These people are individuals. Yes, they are drug users who overdosed, but they are people first. They are someone loved by others.’ – Scott Schmidt, Orleans County chief coroner

ALBION – An Orleans County coroner has pushed a state-wide association to sound the alarm over the opioid crisis.

Scott Schmidt, chief coroner for Orleans County, also serves as president of the NYS Association of County Coroners & Medical Examiners. That organization has partnered with the New York State Association of Counties in producing a public service announcement an ad, warning about the opioid crisis and giving a list of signs for loved ones to see if someone is suffering from addiction.

Scott Schmidt

The new “See the Signs, Save A Life” campaign debuted last month with the PSA available to television stations throughout the state and also to be shared on social media.

“The rationale behind this PSA was simple: We as Coroners, Medical Examiners and Funeral Directors are tired of watching people die senselessly,” Schmidt said in a news release about the campaign. “While we aren’t on the front lines of this epidemic, (such as Fire and EMS personnel,) we are on the front line working with families in the aftermath as the last responders.”

In Orleans County, seven people died from opioid overdoses in 2017 and 224 people were admitted into chemical dependency programs last year from Orleans, Schmidt said Wednesday in a presentation to the County Legislature.

The county has 42,847 people, according to the 2010 Census. Genesee County, population 60,029, had nine people die of overdoses and 404 enter chemical dependency programs.

Niagara County, population 216,469, has about five times as many people as Orleans. Niagara had 88 die of overdoses, nearly 13 times as many as in Orleans, and 1,362 go into chemical dependency programs, Schmidt said.

Monroe County, another Orleans neighbor, has 744,874 residents, 17 times the population in Orleans. Monroe had 220 die from overdoses, more than 30 times how many died in Orleans.

Schmidt said the epidemic is leaving a death toll throughout the state and country. And many families didn’t realize their loved ones were using drugs.

“We are often the recipients of the overwhelming and often times heart-wrenching displays of grief and violent emotion because we are the ones with the answer that no one wants to hear,” Schmidt said. “‘Your loved one died of a drug overdose.’ The far-reaching effects of a drug overdose death are mind blowing.”

The Association of County Coroners & Medical Examiners wants to show the effects of lethal substances with an “in-your-face” approach, hoping to save lives, Schmidt said.

The crisis leaving victims as young as teen-agers to senior citizens, he said.

“It’s scary stuff,” he told county legislators. “It’s nothing to mess around with.”

He praised efforts of Orleans County Sheriff Randy Bower to expand treatment programs in the jail for addicts, and to develop a transition program so they have support when they leave the jail.

Local law enforcement has also been mapping overdoses to try to identify clusters where people are overdosing and dying, so law enforcement can concentrate efforts in those areas.

Schmidt emphasized that every person who dies isn’t just a number.

“These are loved ones,” he said. “They’re not just statistics. They are someone’s son, daughter, father or uncle. These people are individuals. Yes, they are drug users who overdosed, but they are people first. They are someone loved by others.”

Schmidt is a funeral director with the Christopher Mitchell Funeral Homes of Albion and Holley, the Merrill-Grinnell Funeral Homes of Albion and Holley, and the Bates, Wallace and Heath Funeral Home of Middleport. He has served as a coroner since 1990.

Lynne Johnson, County Legislature chairwoman, praised Schmidt for pressing the issue locally and throughout the state.

“The opioid crisis continues to devastate Orleans County,” she said.

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Police chief from ‘safest village’ in NY will speak at local Opioid Task Force

Staff Reports Posted 3 July 2018 at 4:02 pm

BATAVIA – The police chief who has developed an outreach program for people fighting opioid addictions will be the featured speaker on July 18 during the next Genesee-Orleans-Wyoming Opioid Task Force.

Peter Volkmann is the police chief for the Village of Chatham in Columbia, County. He developed “Chatham Cares 4 U” initiative in which any person can request help for opioid addiction and a treatment bed will be arranged with transportation guaranteed.

The Genesee-Orleans-Wyoming Opioid Task Force meets from 10 a.m. to noon on July 18 at GCC, One College Road in Batavia.

Chatham has been recognized as “the safest village” in New York State. But that hasn’t spared the community from the opioid epidemic.

Volkmann is also a faculty member for the International Critical Incident Stress Foundation in Ellicott City, MD and has been featured as an expert on stress for Dateline (NBC), Discovery Channel, MSNBC, and Law Enforcement Television Network (LETN). He will share how one small rural community has been an agent of change when addressing the opioid crisis.

Chief Volkmann will be available after the presentation to answer individual questions.

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2 local Public Health officials part of ‘emerging leaders’ initiative

Posted 29 June 2018 at 5:44 pm

Pettit and Bedard look to further transform Orleans and Genesee health departments

Press Release, Orleans and Genesee County Health Departments

Paul Pettit, Public Health Director for the Genesee and Orleans County Health Departments, will work to transform the role of public health in Genesee and Orleans Counties as part of the third cohort of The Kresge Foundation’s Emerging Leaders in Public Health initiative.

Kresge’s Emerging Leaders in Public Health was designed to provide public health leaders of county and local health departments to build additional knowledge and skills the challenges public health professionals face in their communities. The initiative is designed to develop local public health leaders in pairs and each pair includes the health officer and a future leader from the public health agency.

As a team, Paul Pettit and Brenden Bedard, Deputy Director / Director of Community Health Services for Genesee and Orleans County Health Departments, will be asked to challenge and support each other while building skills and competencies together.

“Public health leaders are valuable assets to our communities,” said Dr. Phyllis Meadows, senior advisor to The Kresge Foundation’s Health Program and the Emerging Leaders in Public Health lead. “Leaders in this program will have the opportunity to create meaningful and lasting change in their agencies that will positively impact those they serve.”

During the program, Pettit and Bedard will participate in an action-oriented program focused on the design and implementation of a transformative concept that shifts or expands the capacity of their local department.

They will also receive a grant up to $125,000 as well as coaching and technical assistance to evolve their ideas into action.

“We are excited to be a part of this national program,” stated Pettit. “Our project will be based on the development of a comprehensive telehealth program in Genesee and Orleans Counties to address our provider capacity and access issues.”

Pettit and Bedard join 19 other teams from across the country selected to participate in the third cohort of Emerging Leaders in Public Health. Collectively, the 20 health departments represented by cohort leaders serve nearly 10 million community members in communities across the country.

“This is a unique opportunity for our two rural counties to be on a national platform,” stated Bedard. “Not only will we be working on our project but have the opportunity to share strengths and challenges with other local health departments across the nation.”

The team will also join a growing community of public health leaders supported by The Kresge Foundation. Since 2015, 64 public health leaders have been trained through Emerging Leaders in Public Health. With the addition of Cohort III, Kresge meets its goal of providing leadership development and resources to more than 100 local, public health leaders across the country so that they can approach public health in a new way.

About The Kresge Foundation

The Kresge Foundation was founded in 1924 to promote human progress. Today, Kresge fulfills that mission by building and strengthening pathways to opportunity for low-income people in America’s cities, seeking to dismantle structural and systemic barriers to equality and justice. Using a full array of grant, loan, and other investment tools, Kresge invests more than $160 million annually to foster economic and social change. For more information visit kresge.org.

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Community members welcome new Oak Orchard Health leader

Staff Reports Posted 26 June 2018 at 9:37 am

Provided photos: Mary Ann Pettibon, Oak Orchard Health chief executive officer, is pictured with Mike Andriatch, Vice President for Advancement for The College at Brockport during a reception for Pettibon on June 19 at the college.

BROCKPORT – The Board of Directors of Oak Orchard Health hosted the community at a welcome reception last week in honor of its new CEO, Mary Ann Pettibon. The event took place at the College at Brockport.

The reception allowed members of local, state and federal government, as well as business owners, other health care professionals, representatives from the college and Brockport Central School, and other community members to meet Ms. Pettibon and learn more about her and about Oak Orchard Health.

Karen Watt of Albion, chairwoman of the board, delivered opening remarks and educated the guests on the complex process of finding and hiring the right person to be the CEO of a Federally Qualified Health Center like Oak Orchard. Besides the standard hiring process, CEO candidates must pass federal requirements as well. Ms. Pettibon comes to Oak Orchard with outstanding qualifications, and the Board of Directors is delighted to have her as the new CEO.

Retiring CEO Jim Cummings introduced Ms. Pettibon to the guests, mentioning what a wonderful transition period they have had working together the last month and a half.  He officially retires at the end of June.

Pettibon kept her remarks brief but expressed her delight at being chosen to lead the organization.  “I am energized by Oak Orchard’s passionate Board of Directors and their experienced staff, and I look forward to moving the organization ahead to the next level.”

Oak Orchard Board Chair Karen Watt with guest, Lisa Franclemont, who is coordinator of Cancer Services of Genesee and Orleans.

Pettibon comes to Oak Orchard with an Executive MBA from the University of Pittsburgh, Katz School of Business, and almost 20 years of health care administration experience in Ohio and Pennsylvania – including roles as a CEO and COO in Federally Qualified Health Centers in Ohio.

Not only well versed in the management and operations of a multi-million dollar health care facility, Pettibon has also authored grants in which she secured almost $2 million in funding for her organization. Her experience includes primary medical care, dental care, and behavioral health care along with substance abuse and pharmacy operations.

Pettibon is drawn to health care in the rural setting because she knows how patients in the rural areas struggle with access to quality medical care.

“Caring for the whole person is critical,” she said. “We have to offer integrated, coordinated care, including transportation, assistance with housing, health education … and continue to work toward breaking down barriers to quality health care that our rural population faces.”

Oak Orchard Health is one of 1,250 Federally Qualified Health Centers in the country. These centers provide primary health care to over 30 million people.

At Oak Orchard Health, the organization saw more than 21,000 people with just under 66,000 total visits in 2017 to the Oak Orchard sites in Warsaw, Hornell, Albion, Lyndonville and Brockport, as well as the mobile dental unit that sees children in Orleans County schools. Oak Orchard staff also go to farm worker living sites for important screenings and inoculations, Watt said.

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Orleans Community Health Foundation seeks new members

Provided photo – This group includes, from left: Angela DiRosa, Orleans Community Health Foundation executive director; Anthony Wynn, OCHF board member; Jeanne Crane, OCHF board member; and Alix Gilman, host of Shirt Factory Café.

Posted 23 May 2018 at 7:48 am

Press Release, Orleans Community Health Foundation

MEDINA – The Orleans Community Health Foundation is seeking individuals who live or work in Orleans County to serve on the Board of Directors. In order to share more information about the Foundation and the Board’s responsibilities, we are holding a meet and greet for candidates on June 6.

The OCHF Board is looking for eager and committed community members to serve as directors. The meet and greet starts at 6:30 p.m. at The Shirt Factory Café. The event offers an opportunity for folks to learn more about OCHF and how they can serve the organization and Orleans Community Health, said Angela DiRosa, OCHF executive director.

“We’re excited for new healthcare services and opportunities through our partnership with Rochester Regional Health,” DiRosa said. “These opportunities will most likely come with the need for facility renovations and technology upgrades so we need the community’s support more than ever. We are looking for neighbors who can bring a fresh perspective and energy to drive our mission to raise funds to support the quality healthcare services provided by Orleans Community Health to the communities it serves.”

If you’re interested in attending the meet and greet, or if you cannot attend and would like more information about the OCHF Board of Directors, please call the office at (585) 798-8061.

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NY has expanded control plan for Lyme, tick-borne diseases

Posted 21 May 2018 at 2:29 pm

Press Release, Gov. Andrew Cuomo

Governor Andrew M. Cuomo last week announced an aggressive Lyme and tick-borne disease control plan to control tick populations on public lands, increase public awareness and access to available data, and create a working group to participate in a Lyme disease summit this summer.

To implement this plan, the Governor has directed the Department of Health, Department of Environmental Conservation, and the Office of Parks, Recreation and Historic Preservation to collaborate in order to target priority counties and public lands with the highest risk of tick exposure and Lyme disease. Tick season has started in many areas of the state and will continue through November.

“Lyme disease and other tick-borne illnesses are a major threat to the health and wellbeing of New Yorkers, and we are taking aggressive actions to help stop the spread of these disease,” Governor Cuomo said. “With this control plan, New York is making a major commitment to research, awareness, and prevention of this public health crisis to keep New Yorkers safe and free of these preventable diseases.”

Tick Control Methods

Tick control methods will include strategic application of eco-friendly tick control treatments on parkland in the Hudson Valley, Capital Region, and Southern Tier where the public is at the highest risk of tick exposure and Lyme disease. Additionally, the state will expand the use of 4-Poster “tickicide” deer treatment feeding stations that help to control ticks spread by white-tailed deer. While the deer feed on corn at the station, treated rollers brush insecticide against the animal’s neck, head, and ears where many adult ticks tend to feed. The stations are already successfully in use in certain areas on Long Island, including Robert Moses State Park and Connetquot River State Park.

Due to rodents also being largely responsible for infecting ticks with Lyme disease, the state will expand use of commercial products to combat the spread of illness by rodents. This includes the deployment of tubes filled with permethrin-treated cotton balls which mice use for nesting material, which kills the ticks in their early larval stage when they attach to mice. The state will also expand its usage of the Tick Control System, a small box that attracts rodents. When an animal enters the box, it receives a low dose of fipronil, which is the active ingredient in many treatments used to eliminate ticks on dogs and cats. The state will also conduct aggressive routine maintenance of vegetation areas at these parks to minimize potential exposure of visitors to ticks.

Expanded Education and Outreach

Beginning immediately, participating agencies will develop a campaign focused on deploying information about tick-borne disease and prevention, specifically targeting high-risk groups such as hunters and hikers. DEC will expand its website to include a tick-borne disease page featuring information relevant to anglers, hunters, trappers, hikers, and those who enjoy outdoor recreation in New York. This page will also be linked with DOH’s website.

In addition, DEC will coordinate with 1,600 sporting license issuing agents across the state to distribute information and material on ticks and tick-borne diseases, and will utilize agencies’ mailing lists and electronic newsletters to keep thousands of outdoor enthusiasts informed. OPRHP will also distribute information and materials to hunters through their hunting permit program and make information available to visitors, and will continue to post metal tick warning signs on state lands and parks.

Expanded Data Access

DOH will post current and retrospective tick collection and testing results to Health Data NY, opening up the data to the public. This information was previously only shared with local health departments and state park managers to aid in their education and prevention campaigns. Given the considerable interest in this information from providers, researchers and advocates, the Department will now make this information more readily available to the general public.

Research and Evaluation

Tick-borne diseases, particularly Lyme disease, are among the fastest growing infectious diseases in the United States. However, diagnosing Lyme disease can be particularly difficult. Patients with Lyme disease can present a number of possible symptoms, which can wane over time, and be easily confused with hundreds of other diseases. The Governor has directed the Department of Health to pursue private research partnerships to develop a better diagnostic test, which can ultimately lead to more effective treatments.

Working Group and Summit

Governor Cuomo has directed the Department of Health to establish a new working group on Lyme and other tick-borne diseases comprised of representatives from professional organizations, academic institutions, and local health departments. The working group will join participating state agencies at a one-day summit, to be held this summer, to review New York State’s current initiatives and make policy recommendations on actions that New York State can take in the next one to three years to advance prevention, diagnostics, and other best practices.

New York State Health Commissioner Dr. Howard Zucker said, “These new initiatives complement the Department’s renowned research efforts and aggressive actions to better inform and better protect New Yorkers from tick-borne illnesses. I commend Governor Cuomo for this commitment and for instituting bold new control measures to help limit the spread of these diseases and protect public health.”

Tick Prevention Tips

• While hiking, working, or spending time in wooded areas: Wear long pants and long-sleeved shirts to protect against ticks other biting insects

• Check for ticks every two to three hours while outdoors and brush off any ticks before they attach.

• Perform a full body check multiple times during the day, as well as at the end of the day to ensure that no ticks are attached.

• Consider use of repellents containing DEET, picaridin, or IR3535, following label instructions

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Orleans, Genesee each awarded $30,500 grants for health initiatives

Posted 21 May 2018 at 11:22 am

Press Release, Genesee and Orleans County Health Departments

Genesee and Orleans County Health Departments were recently notified each county would receive $30,500 in New York State Department of Health’s ongoing Local Health Department Performance Incentive Initiative.

This is the fourth year of the program which NYSDOH chose to focus on improving performance in chronic disease prevention for the fall 2016 to June 2017 timeframe.

Although chronic disease has surpassed communicable disease as the leading cause of death and disability in the United States, public health activities to prevent chronic disease may be less established for some local health departments.

The 2016 Performance Incentive initiative encouraged LHDs to strengthen those efforts and meet related standards established by the Public Health Accreditation Board. In addition to improving chronic disease prevention activities, this year’s Incentive Program exposed LHDs to the process of submitting documentation for full PHAB accreditation.

This incentive program is voluntary and 41 local health departments participated, completing the initiative by submitting all the required documentation during the performance period.

All participating counties received a $5,000 base award and a total of 20 LHDs received a base award and additional incentive award based on the scoring of their submission. The incentive awards ranged from $25,500 to $60,500 based on county population size. Of the 17 small counties that participated, eight were awarded the full incentive funding which included Genesee and Orleans counties.

“I am pleased with the efforts the staff in both counties put forth while participating in the Incentive Program and to be recognized by receiving the maximum award,” said Paul Pettit, director of Genesee and Orleans County Health Departments. “It also gave our staff an opportunity to see the process used to eventually apply for national accreditation in the future.

Pettit said the health departments in Genesee and Orleans are looking at options for spending the grant.

“All funds are to be spent to support costs associated with Article 6 eligible services / state aid-eligible,” he said.  “These funds will help support several different public health projects over the next year.”

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Albion native who has alopecia featured in SELF magazine

By Tom Rivers, Editor Posted 17 May 2018 at 9:59 am

Joyce LaLonde has autoimmune condition that made her hair fall out

Photos courtesy of Joyce LaLonde: Joyce LaLonde hasn’t shied away from going bald. When she started to lose her hair, some people encouraged her to get a wig. “Societal standards of beauty are incredibly off base in many ways, and the significance of hair is one of those ways,” she writes in SELF magazine.

Joyce LaLonde has been Rapunzel during Halloween, with her flowing mane of red hair a highlight of the costume. For much of her childhood and in college, LaLonde’s red hair was a big part of her identity.

Now the Albion native, 22, is bald after losing her hair. She has alopecia, an autoimmune condition that causes hair to fall out. She started to notice the hair loss a year ago.

LaLonde graduated from Syracuse University in May 2017. She and her friends celebrated that milestone by going on a trip to Central America. On that trip she noticed a bald spot on her head. In the next three months, more bald spots appeared as her hair became thin. Finally, in August she shaved her head.

LaLonde posted a selfie on social media, letting people know she had alopecia. She said she was determined to rock the bald look. More than 1,000 people liked her post and gave her strong affirmation.

She had a hashtag about alopecia on her post, and that is how SELF found her and reached out to her.

Almost a year after her hair started to fall out, LaLonde isn’t optimistic it will come back. She has changed her diet, exercised more and made other changes for her health. In some cases, those changes have made a difference for people with alopecia.

Many people who see her assume she has cancer or some other disease. In reality, LaLonde said she may be the healthiest she’s ever been, she just doesn’t have any hair.

Joyce’s long strawberry blonde hair was a big part of her identity growing up.

This week she is one of seven women with alopecia featured by SELF magazine. Lalonde is the first of seven women profiled in the magazine.

She says society is very beauty focused and attaches too much significance to hair. She acknowledges going bald is difficult.

“I cried in the process of losing my hair,” she said.

However, when she shaved her head, “it was liberating.”

For some people with alopecia, going bald is like grieving the loss of a limb, she said.

LaLonde works at Syracuse University as a student communications specialist. She earned her bachelor’s degree there in public relations and policy studies.

Doctors don’t know why she developed alopecia. Not knowing the cause makes it difficult to treat.

LaLonde is the daughter of Steve and the late Dr. Kathy LaLonde. Dr. LaLonde also went bald, and would succumb to cancer at age 54. Joyce said she is grateful her baldness isn’t from a serious disease.

“I feel very fortunate,” she said.

And her friends and family “have all been incredible.”

LaLonde had never heard of alopecia until a year ago. Some kids get it in elementary and middle school.

“I have it easy, really,” she writes in SELF. “I made it to 22 with a head full of Rapunzel hair. I had hair through middle school.”

To see the article in SELF, click here.

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For Women Only offers inspiration, highlighted by cancer survivors

Photos by Ginny Kropf: Sarah Climer, left, shines light from her cell phone on her aunt Marie Preston after power in the entire Lyndonville area went out Tuesday night. Preston is a cancer survivor, who shared her story during For Women Only at White Birch Golf Club.

Posted 16 May 2018 at 12:50 pm

Cindy Perry, right, director of education, wellness and marketing for Orleans Community Health’s Community Partners, introduces cancer survivor Carol D’Agostino of Kendall in the dark at For Women Only after power in the Lyndonville area went out Tuesday night.

By Ginny Kropf, correspondent

LYNDONVILLE – The 22nd annual For Women Only was a night to celebrate and educate women, said Cindy Perry, director of education, wellness and marketing at Orleans Community Health’s Community Partners.

It also presented a bit of a challenge when half way through the evening, the power in the Lyndonville area went out, and the only light available was from the ladies’ cell phones.

The event not only celebrates cancer survivors, but provides an evening of entertainment while stressing the importance of early detection. Perry said that money donated to the event stays right in Orleans County to help underinsured, those with no insurance or those who just fall through the cracks.

Many of the nearly 200 women in the room have attended every one, while for others, like Kellie Hurrell of Medina, it was the first one.

Hurrell is only two years from breast cancer detection. After moving to Massachusetts for 10 years, she moved back to Medina in 2013 and was diagnosed with breast cancer in 2016.

“I’m so blessed it happened while I lived here,” she said.

She said she thought For Women Only was a wonderful event for women.

Lisa Franclemont, coordinator of Cancer Services Program of Genesee and Orleans counties, said she just loves the concept of For Women Only.

“It’s not just for survivors, but all women,” Franclemont said. “We are all touched by cancer. Nearly everyone is either currently in the fight or a survivor, or we know someone who is.”

Women had an opportunity to visit several vendors’ booths, including wine tasting.

Artist Carol Culhane of Gaines designed this Tree of Life, which was displayed at For Women Only Tuesday night at White Birch Country Club. Culhane placed a dot on the tree for any woman who wanted to honor or memorialize a loved one affected by cancer.

Local artist Carol Culhane designed a Tree of Life, on which she painted a dot for any woman who wanted to honor or memorialize anyone affected with cancer. The painting will be donated to Medina Memorial Hospital.

Guest speaker was Chelsea Young, who talked about “Simple Steps to a Healthier Home,” and the positive impact on one’s health by changing to essential oils and natural products. Nearly all cleaning and beauty products contain toxic chemicals, many of which are not regulated or tested long term, she said.

Chelsea Young, guest speaker at Orleans Community Health’s For Women Only, talked about “Simple Steps to a Healthier Home,” urging women to read the labels on products they buy and consider changing to natural ones.

She urged women to read the labels when purchasing any of these products. She said the American Lung Association lists cleaning supplies and household chemicals among the top indoor air pollutants. Young said 133 different carcinogens have been detected in products we use every day, and candles and air fresheners are on the top 10 list.

She grew up in what she called an “unhealthy home,” where everyone had health problems. Her father was diabetic, her mother had chronic infections and she had to have regular allergy shots.

“The day we made the decision to try essential oils and natural products was the day we began to take our lives back,” Young said.

Two cancer survivors shared the story of their journey from being diagnosed with breast cancer to their successful surgeries.

Carol D’Agostino, principal of Kendall High School, said she doesn’t like to talk about herself, but felt it was important to step outside her comfort zone to help others going through the same thing. She was first diagnosed with breast cancer 25 years ago when she was only 32 years old.

As in many cases, cancer doesn’t strike when it is convenient. D’Agostino was an adult in college, trying to finish her degree. She found the lump when her arms were aching after a day of Christmas shopping.

She met with doctors and settled on a course of action. She was scheduled to start teaching in September and she was determined to meet that goal.

“The hardest part was that nagging queasiness in my head – would I ever see my grandchildren,” she said.

The surgery was successful, but then on January 2, 2017, her cancer journey began anew when she was again diagnosed with breast cancer.

“That’s the reason to have a mammogram every year, so you can catch the cancer early,” D’Agostino said.

This second diagnosis came as she and her husband, with their family, were preparing to go on a cruise in April to celebrate her 40th anniversary.

“I didn’t want to give cancer control over my life,” she said, determined not to cancel their cruise.

Her surgery was scheduled Feb. 14 and she opted to have a mastectomy and reconstructive surgery at the same time – a procedure which took eight hours.

“My outcome was positive because I had regular mammograms and they found the cancer early,” D’Agostino said.

A group of women called the Lawn Chair Ladies from Kendall entertained at the 22nd annual For Women Only Tuesday night at White Birch Golf Club in Lyndonville.

Marie Preston of Kent shared a much different journey, being a cancer survivor for two years.

Her story began with her adoption by foster parents and growing up in the town of Greece. She married her husband Jim and in 2011 had a job as manager for an RV park at a country club.

They had started a landscaping business and planned to move to Myrtle Beach, when in September he was not feeling well. He went to work, but collapsed at his desk. He was diagnosed with colitis and died in the night.

“My dreams, my plans, my financial support were all gone,” Preston said. “I was too young to get Social Security. I didn’t know what to do.”

A friend in Florida sent her a ticket to come down for a visit, and she was all packed to go when she discovered a lump on the right side of her breast. At 7:30 a.m. the next day, she was at the Wendy Logan Clinic, as she had to be at the airport at 3:30 p.m. After her mammogram, she was told she needed to stay for an ultrasound as they had found something in her left breast. Then she needed a biopsy.

“They told me I had better not go on this trip,” Preston said.

Then came the call nobody wants to hear, she said.

Surgery was scheduled for January 26 and she underwent a lumpectomy.

In April, she started radiation.

“While I was still recuperating, I learned I would not have a job in the spring,” Preston said. “I now had no job and was not up to par to look for a new one.”

Fortunately, a campground owner she had come in contact with at her previous job heard about her situation and offered her a job at his campground on Conesus Lake. It was a good hour’s drive, but it was a job.

“I finished radiation, started my new job and made new friends,” she said. “But I still started and ended my days crying.”

This went on for a year, and then her son James got her interested in the landscaping business.

“He told me I was not alone in my grief,” she said. “He said he had lost his dad and his business partner, also. He told me to pick myself up and dust myself off.”

She did – she decided to open a gift shop and country market to complement the landscaping business.

On Saturday, Preston’s Country Market at 14877 Ridge Rd., Kent, will celebrate its grand opening.

Dr. Mary Rykert-Wolf with Orleans Community Health in Albion, added her message about the importance of early detection.

She had two women in her life – one is her mom and the other her aunt.

“My mom had early detection and is here with me,” Wolf said. “My aunt smoked and should have had a CAT scan of her lungs, but didn’t. She collapsed in December and was dead by January. You have to take care of yourself. If you find it early, you’re good. You have to do it for your family, because when you’re dead, they’re the ones suffering.”

The evening concluded with a basket raffle.

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Oak Orchard Health welcomes new CEO, Mary Ann Pettibon

Posted 9 May 2018 at 4:09 pm

Press Release, Oak Orchard Health

ALBION/BROCKPORT – The Board of Directors of Oak Orchard Health is pleased to announce the appointment of Mary Ann Pettibon as Chief Executive Officer, effective May 7.

She succeeds Jim Cummings, who retired after serving about five years as Oak Orchard’s CEO.

Ms. Pettibon comes to Oak Orchard with outstanding qualifications. With an Executive MBA from the University of Pittsburgh, Katz School of Business, and almost 20 years of health care administration experience in Ohio and Pennsylvania – including roles as a CEO and COO in Federally Qualified Health Centers in Ohio – Ms. Pettibon has a wealth of experience on which to draw as she takes the reins of Oak Orchard Health.

Not only well versed in the management and operations of a multi-million dollar health care facility, Ms. Pettibon has also authored grants in which she secured almost $2 million in funding for her organization. Her experience includes primary medical care, dental care, and behavioral health care along with substance abuse and pharmacy operations.

Ms. Pettibon is drawn to health care in the rural setting because she knows how patients in the rural areas struggle with access to quality medical care.

“Caring for the whole person,” says Ms. Pettibon, “is critical. We have to offer integrated, coordinated care, including transportation, assistance with housing, health education … and continue to work toward breaking down barriers to quality health care that our rural population faces.”

In her spare time, Ms. Pettibon is an avid runner who also enjoys biking and hiking. An accomplished half-marathoner, she is looking forward to exploring our region’s hiking and biking trails, Lake Ontario and the Finger Lakes Wine Trail.

Oak Orchard Health is a recognized patient-centered medical home and Federally Qualified Health Center located in Brockport, Albion, Lyndonville, Hornell and Warsaw.

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