Meetings set for input on children with special health care needs in Genesee, Orleans

Posted 15 September 2025 at 11:57 am

Press Release, Independent Living of the Genesee Region

BATAVIA – The Independent Living of the Genesee Region, in partnership with the Genesee and Orleans County Health Departments, is pleased to announce an upcoming focus group dedicated to the families and caregivers of Children and Youth with Special Health Care Needs (CYSHCN).

This important event will take place on two separate dates at accessible community venues to help shape future programs and services.

The meeting on Sept. 22 will be in Batavia at the Independent Living’s office at 319 West Main St., while the Sept. 24 session will be at the Hoag Library in Albion, 134 South Main St.

The focus group offers a welcoming space for parents, guardians, and advocates from Genesee and Orleans counties to share their experiences, challenges and suggestions regarding services for children with special health care needs. Input from participants will directly inform initiatives and resources designed to improve care and support for CYSHCN and their families.

All attendees will have an opportunity to have their voices heard in a supportive environment. Feedback collected will help guide future planning and advocacy efforts at the local and state level. A $50 Visa gift card will be provided as a stipend to the first 15 participants at each location.

For more information or to register, please contact April Fearby at (585) 815-8501, Ext. 401 or visit: http://forms.office.com/r/ai0daB9xfZ.

About Independent Living of the Genesee Region:

Independent Living of the Genesee Region, part of the WNY Independent Living Inc., Family of Agencies, is a catalyst for systems and individual change, enhancing the quality of life for people with disabilities, while respecting diversity and promoting choices and alternatives for independent living.