Fundraiser on April 20 will help with medical expenses for 9-year-old

Ahmed has several health challenges, including a club foot

Provided photos: Ahmed, a 9-year-old from Tunisia, faces several health challenges. Volunteers from World Life Institute and the Voice Gavel Club are planning a benefit April 20 at the YMCA in Medina to help with his medical care.

MEDINA – A young boy from Tunisia with multiple health problems is getting a new lease on life, thanks to young volunteers from World Life Institute-Project Life, and the Voice Gavel Club. The Voice Gavel Club is a youth public speaking component affiliated with Toastmasters International.

Ahmed Cherif was brought to the United States by his mother last year to stay with relatives here. He was born with a club foot, is non-verbal, developmentally delayed and has left facial paralysis.

Since arriving in Western New York, Ahmed has been identified as having Oro-Facial Syndrome Type II, Rumination Syndrome, autism and bone growth delay. He also suffers from allergies and asthma.

Ahmed is under the care of the pediatric team at Golisano Children’s Hospital, part of the University of Rochester health system. His most prominent medical problem was persistent vomiting and inability to retain what he ate. He was facing the probability of a feeding tube. Last July he weighed only 35 pounds.

He still has a lot of tests and treatments ahead, including further neurological evaluation, starting with an MRI of his brain. He will also be assessed for spinal scoliosis.

Linda Shakoor, director of Project Life, said, “Project Life is committed to supporting vulnerable youth and fostering a culture of support, especially from Orleans County. Medina Area Association of Churches and many other churches in Medina and Albion have supported more than 130 world orphans hosted here since 1999. The relationships these children form when they receive local kindnesses lasts throughout their lives.”

Since Ahmed arrived in the United States in January 2023, Project Life has had the privilege to support improving his life. According to Noori Bibi, vice president of the YMCA board, when he came here he had never seen a dentist. He has now received extensive dental treatment, including surgery.

He had worn leg braces since the age of 3, but no longer needs the braces, thanks to supportive physical therapy in the last six months. His eyes were tested and he now wears corrective glasses.

Ahmed is staying in Medina while receiving medical care.

Some of his digestive issues have subsided due to tests done at Yale University, where he was diagnosed with Rumination Syndrome. Now, with medication, he has gained weight and the vomiting has subsided. He is up to 45 pounds and is outgrowing his clothes for the first time in three years. He’s an inch taller and is benefiting from ongoing physical, occupational, vision and speech therapy.

Over the summer, Ahmed had the opportunity to play with other children during activities arranged through Project Life. He was able to visit the zoo, go to the beach and visit Niagara Falls. He is still shy due to little interaction with other children, but he is slowly beginning to integrate.

Ahmed had never attended school, but with support of Project Life he was enrolled in Aspire in Buffalo, a school for special needs children. He loved his first day so much he did not want to get out of the van when they returned home. At the school open house, teachers and staff praised Ahmed and commented on how bright and easy going he was. For the first time, he was able to hold crayons and color. He has also begun to recognize letters and numbers in English.

On April 20, the YMCA will host a special event to benefit Ahmed and his medical costs.

“Ahmed has inspired his friends to come together to raise crucial funds to enhance his quality of life,” Bibi said. “Driven by a desire to showcase the power of creativity of youth, these ambitious young people are working hard to organize an engaging family day for the whole community.”

The event will take place from 1 to 5 p.m. and feature a fashion show and captivating performances and presentations. Attendees will be immersed in a world of entertainment and camaraderie, Bibi added. A silent auction, creativity in art workshops, delicious treats at the Bake and Samosa Sale and charity basketball game are some of the events planned.

In addition, there will be an opportunity to engage in thought-provoking discussions at the speakers’ corner, enjoy intricate designs with face painting and henna and explore a variety of arts and crafts at the sale. For the younger children, there will be a bounce house, games and more.

Safia Delobbe-Scott, 15, is one of the young leaders driving the event’s efforts.

“We are driven by a deep passion to make a meaningful difference in Ahmed’s life, while highlighting the extraordinary potential of youth,” Delobbe-Scott said. “This event will be a celebration of unity and compassion, showcasing the positive impact we can have when we come together.”

The community is invited to meet Ahmed, loving and vivacious despite his many challenges, and support the extensive medical interventions he requires, Shakoor said.

Anyone wishing further information or wanting to inquire about sponsorship opportunities should contact info@worldlife.institute.

For information on the event and Ahmed or to make a donation, click here.