Benefit on Saturday in Kendall backs Paisley, 2-year-old with health challenges

Provided photos: Paisley stays active despite frequent doctor and hospital visits. Ashley Nenni holds her daughter. There will be a benefit at the Kendall Fire Hall from 8 a.m. to noon on Saturday, an event that includes breakfast with Santa.

KENDALL – Ashley Nenni is grateful for her 2-year-old daughter, Paisley. Despite her health challenges, Paisley shows lots of spunk and love.

Paisley was born with her small intestine outside her body. She was also seven weeks premature. Her small intestines were removed and Paisley only had 15 centimeters left.

Ashley Nenni and Josh Daniels are shown with their daughter, Paisley.

She has a central line and g-tube surgically implanted to receive most of her nutrition. With the central line comes many infections, and hospitalizations for Paisley.

Paisley has Short Bowel Syndrome or “Short Gut Syndrome,” where the body is unable to absorb enough nutrients from food due to the massive loss of intestine. The small intestine is where most of the nutrients are absorbed during digestion.

The community will have a benefit for Paisley and her family on Saturday from 8 a.m. to noon at the Kendall Fire Hall. There will be breakfast with Santa for $15 for adults and $7 for kids ages 3 to 10. Kids under age 3 are free. Tickets will sold at the door. The food is catered by The Grove 1848. Music will be provided by DJ Mike Neale.

Ashley Nenni, 25, and Paisley’s father Josh Daniels appreciate the community’s support.

Nenni grew up in Holley and lives in Waterport. She said she often takes Paisley to two or three doctor’s appointments each week, and there are frequent hospitalizations due to the infections.

Ashley said Paisley has adapted to the condition because it is all she has ever known. She even cleans the g-tube.

Paisley in February 2023 had her small intestine extended to 45 centimeters. Paisley is working her way off from her Total Parenteral Nutrition.

The family is grateful for the benefit on Saturday. Ashley said they face expenses for driving to doctor appointments and frequent hospital stays, and some missed work.

The benefit is planned by Sue Dann and Paisley’s grandmother Tammy Nenni. There are almost 200 baskets to be raffled and a signed cleat from Tre’Davious White of the Buffalo Bills.

Ashley’s dad is Rollie Nenni, the retired Albion and Holley police chief. He was also fire chief in Holley.

Ashley said her father is a stable presence in what can be often stressful times navigating the healthcare for her daughter.

“He helps to calm me down,” she said.