Jimmer Szatkowski and his family have raised more than $500K for ALS

Jimmer’s brother Andrew will attempt 50-mile ‘Beast of Burden’ run in Lockport as fundraiser

Jimmer Szatkowski and his brother Andrew of Medina are shown at Fenway Park when the two went to a Pearl Jam concert in September 2024.

A Medina native who was diagnosed with ALS about five years ago has now raised more than $500,000 for ALS research.

Jimmer Szatkowski, 53, was diagnosed in March 2021. He has raised $532,633, which has been directed to the Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital. To donate to ALS research through Jimmer Szatkowski’s fundraising page, click here.

His brother Andrew Szatkowski of Medina has helped with several of the fundraisers and is planning another one when he attempts running the Beast of Burden 50-mile run on Feb. 7 from Lockport to Middleport, running the loop twice that day. That race is known as one of the most challenging in Western New York.

Jimmer graduated from Medina in 1990. He now lives in Central New York and opened the first Chick-fil-A restaurant in Upstate New York in 2018 in Cicero. He continues to be a part of the restaurant’s daily operations.

Jimmer responded to a few questions about living with ALS. He said he is most grateful for being able to see his daughter Samantha and son Jack graduate from college. He also watched Jack become an officer in the U.S. Marine Corps. Jimmer also is grateful to see younger son Hunter grow up.

He is very thankful to have experience five more Christmases and see so many more thrilling Buffalo Bills games since his diagnosis. ALS has taken his mobility and ability to verbally speak.

He remains deeply motivated to remain active and present for his wife, Betty, and their children, and to continue “fulfilling my purpose as a Chick-Fil-A operator.”

ALS has taught him valuable lessons in patience and humility, Jimmer said.

His experiences growing up in Medina, helped make him strong to withstand the battle with ALS.

“Dying is easy, Living is Hard,” he responded when asked about a life lesson from living with ALS.